طفلة بسمله عمرها ١٢٩يوم مصابه في مرض الضمور العضلي شوكي النوع الاول ، وهو اشد انواع هذا المرض، الطفله في العناية المركزة  

?? Basmala's Struggle: A Race Against Time??

My beautiful baby, Basmala... She hasn't even completed 129 days of her life. She carries within her chest a breath that tires before it is complete, and a tiny smile that fights against the pain not to fade.

She was born with Spinal Muscular Atrophy – Type 1 (SMA Type 1), and she remains in Palestine Because it is not originally in it, waiting for the treatment that could restore her right to life before time steals it away.

I know my baby is fighting a difficult battle with a heart that hasn't yet learned how to complain... A heart that knocks on the doors of life every day, hoping someone might hear its pulse.

Time is running fast, and the disease does not wait. But hope is a chance for her to grow... to laugh... and to live as every child deserves to live. ❤️‍?

#save_basmalah